As cholangiocarcinoma is a relatively rare type of cancer, there are not many oncologists in Ireland who specialise in the disease.

It is strongly suggested that all diagnosed with cholangiocarcinoma (CCA), if not under already under the care of a team experienced in the diagnosis, treatment, and management of those with CCA, should seek a referral to a named specialist with such knowledge.

You should also strongly consider seeking a second opinion from a specialist, to ensure the treatment paths offered are most appropriate.

Please see here a list of some of the specialists

Your oncologist should suggest molecular profiling, as all patients with a diagnosis of CCA, should now receive this. You can find out more about molecular profiling and targeted therapies, ‘personalised medicine’, here.

Molecular profiling is also known as “genomic testing”, “tumour testing” or “biomarker testing”.

Ideally, you want molecular profiling performed when you’re first being diagnosed with cholangiocarcinoma so you and your doctor will know all of your treatment options.

Molecular profiling is covered by all the major insurance companies for cholangiocarcinoma.

Unfortunately, as of February 2025, molecular profiling is not provided by the HSE to public patients, although public patients can pay for it to be done privately.